I have Systemic Lupus Erythematosus, in short SLE or Lupus. Lupus is an autoimmune disease, which means that the immune system over actively attacks the body's cells and tissue, resulting in inflammation and tissue damage. From inside I have constant severe joint and muscle aches and my nerve system in my legs has been down too.
My doctors say I’m a special case, but I do not take this for flattery. It’s been a lonely road to deal with the disease and try to make people understand. Now by telling my story and giving people a chance to see and feel what it’s like to live with Lupus, I hope to be able to help others like me for whom it has been a lonely journey in the fight against Lupus too.
My goal is to raise awareness and understanding of the disease not trough the traditional means. I am very honored and thankful that I was given the opportunity to tell my story through the powerful medium of film and would like to take you along into my life for a few minutes. These minutes deeply explore the influence Lupus has on my life and the experiences that shaped me into who I am today. I strongly believe that images are more powerful than only words and hope that this film will create a better understanding for all who suffer from Lupus, and those affected by Lupus.
FLARE—Living with Lupus
Flare
An intimate look at the life of a Dutch-Surinamese woman, Ida, suffering from an extreme case of Lupus ( SLE ). We meet Ida and follow her through day to day life, from long train rides seeking medical help to the intimacies of her past in this monochromatic short film. As though from a first person observer, we hope to better understand a less than popular disease and the effects of its affliction.Lupus is an autoimmune disease, in a nutshell the auto immune system attacks the body, causing damage to the cells because it's overactive/ It can be fatal.The doctors say Ida is a special case but she doesn't take it for flattery.
Should she be more concerned with legacy or living ?Ida started a foundation, Plum Blossom Foundation, to gain awareness for Lupus. Its sometimes a lonely road. There are a lot of celebraties who suffer(ed) from Lupus: such as Seal, Lady Gaga, Toni Braxton, Michael Jackson, Leslie Hunt, Mercedes Yvette, Kelly Stone, Pietra Thornton, Jasmine Guy, Nick Cannon, Cori Broadus, Anna Nicole Smith.
So Join Ida in the fight against Lupus just as Beyonce, Heidi Klum, Courtney Cox, Liza Manelli, Lil' Kim, Kim Kardashian, Aaron Carter, Julia Roberts, President Bill Clinton, Patti Labelle, Charlize Theron and Will Smith are doing.
Visit www.plumblossomfoundation.com and support!!Sharing is caring.>via: http://www.plumblossomfoundation.com/whoisida.html#about